7PM SATURDAY 29TH APRIL 2017 PENINSULA ROOM, CENTRAL PIER DOCKLANDS

What is EB?

Epidermolysis Bullosa

Epidermolysis Bullosa (EB) is a rare genetic disease that results in painful blistering and peeling of the skin at the slightest touch. EB children are often called ‘butterfly children’ or ‘cotton wool kids’ because of the fragility of their skin.

Living with EB has been likened to living with third degree burns. It requires constant bandaging, vigilance and pain relief. The disease can leave sufferers disfigured and all too often leads to fatal systemic complications. Living with EB takes a heavy physical and emotional toll for not just the sufferers, but all those around them – touching people from all walks of life…and that’s why we need your help.

The EB Research Foundation is a proud supporter of Debra Australia